Wednesday 30 March 2016

Painless HSG test

I always said that this was the one test I wouldn't do. I've talked to people who have done it and read up about it on the internet. I've heard horror stories about it and despite having been in labor for 53 hours, 18 of which were on pitocin and no pain medicines, I didn't want to do it.

My problem isn't getting pregnant. I've had 3 miscarriages in the past 6 months, so I know my tubes are clear. They still told me I would have to do it.

So I took Motrin and Codine with me to the doctor and took 600 mg of Motrin about an hour before the procedure. They told me not to take Codine. I also told them I was afraid of the pain so they gave me an injection in my butt about 15 minutes beforehand. I don't know what it was and it only cost about 5,000 but it worked great. I barely felt anything.

In the beginning, they said the dye wasn't going through my tubes at all and asked if I had had pelvis surgery. Then they put more dye in and had me turn to my left side and then my right side. Everything was totally clear. I have to take four pills of doxycycline (an antibiotic); 3 today and 1 tomorrow.

I go back in a few days to get the results from the blood test to see about the natural killer cells and also to check ovulation.

Money
  • Today I paid 280,840.
  • Doctor's visit 32,266. 
  • Injection 4,963. 
  • HSG 197,262. 
  • CT 46,350. 
  • Tricare (my insurance) reimbursed me for 193,434.
  • Out of pocket was 87,406.
More info
For more info, you can see how much this has cost, I also have a summary of dates, as well as my Rx protocol

Monday 28 March 2016

First tests at Pyeongtaek St. Mary's Hospital

I had my third miscarriage on Friday. I got a positive pregnancy test on Tuesday, then started spotting on Wednesday, ended up bleeding on Thursday, and spent the morning in the ER on Friday where both blood and urine tests came back as negative. Betas were 4.

I had had enough and decided I needed to get some type of drugs to stay pregnant. I had been taking B vitamins (to help with low progesterone) and low dose aspirin (to help prevent blood clots) but those weren't enough.

Later on I actually bought OTC progesterone cream to help with a suspected LPD. If you use progesterone cream make sure it comes from natural sources. Emerita is recommended by Wray at Progesterone Therapy. On Amazon, Smoky Mountain Naturals is a best seller.

I went to Pyeongtaek St. Mary's Hospital today. The women in the international clinic speak fluent English. One of them worked in the US as a nurse for 20 years and the other spent a few years in the US, also as a nurse. There's one more, but I haven't been formally introduced to her.

They ran blood tests for natural killer cells and said my husband wouldn't need to get tested. Something that I don't agree with since there could be a chromosomal issue that causes miscarriages.

Money
  • The total costs for today was 143,700.
  • Doctor's visit 42,900. 
  • Blood test 100,800). 
  • Tricare (my insurance) reimbursed me for 61,609.
  • Out of pocket was 82,091
More info
For more info, you can see how much this has cost, I also have a summary of dates, as well as my Rx protocol

About

Updated 25 September 2017
I started this blog in late March 2016. I've recorded the costs for Pyeongtaek St. Mary's on this page. It includes testing and pre-natal care, but not the birth. I wanted to have a home birth with Danica the midwife and Jinny the doula from Mamas Birth Center. However, I ended up with an emergency C-section at Pyeongtaek St. Mary's.

Research and Online Support
I've put together a list of useful websites and articles that discuss immunological issues related to miscarriages. I found the Yahoo group immunology support to be very helpful. They also have a secret Facebook group called reproductive immunology support. In order to join the Facebook group, you'll either need to ask in the Yahoo group to be added or have someone already in the group add you.

Infertility Treatment in Korea
You can read more about these hospitals and clinics at Infertility Treatment Centers in Korea and Birthing Centers in Korea

My Medical History
First Pregnancy
I got pregnant the first month I tried in 2011. My daughter was born in October of 2011 at
Kim Ok Jin (Rosa) Agitanseun Natural Birth Center (김옥진조산원) in Ansan. I got divorced shortly after she turned 2 and I re-married in the summer of 2015. My husband has no children from his previous marriage.

First Miscarriage: Chemical Pregnancy
I had a suspected chemical pregnancy in November 2015. I didn't take a test, but I was late and ended up bleeding for about 10 days. Looking back on it now that I have more experience with miscarriages, I'm pretty sure I was pregnant then.

I went to Dr. Yoo Women's Hospital (유광사여성병원) in Seoul in early November 2015 to make sure I was ovulating. They did an ultrasound and checked my lining as well as did some blood tests and everything seemed fine. I never went back because  I found out I was pregnant a few days later in late November 2015.

Second Miscarriage: 6 Weeks
I went to the doctor at Soonchunhyang Hospital (SCH) in Seoul at 6 weeks in early December. The baby was measuring about 6 days behind what it was supposed to, but they assured me everything was fine even though my cycle was not based on 28 days.

I had a sinking feeling about it and went to IMom Obgyn in Pyeongtaek 2 weeks later in December 2015 to get a cheap ultrasound (you get what you pay for). There was dried blood on the sofa in the waiting room. The doctor there had a horrible bedside manner and just said, "miscarriage" and literally shooed me away, telling me to go back to Seoul.

Back in Seoul at Soonchunhyang Hospital (SCH), I was livid. I found out they had entered the wrong information about my medical history and then said then said that they had thought something was wrong at the previous appointment but neglected to tell me. When I said I wanted to file a formal complaint, they told me to email. Since it had been about 3 weeks since the baby had died and my husband and I weren't living together, I decided to get a D and C in January 2016 so I didn't risk hemorrhaging at home. I did it at SCH and to add insult to injury the paper I signed said I was getting an abortion (big difference), even though three ultrasounds had confirmed the baby had died.

I would never recommend Soonchunhyang Hospital (SCH) or IMom Obgyn due to the inexcusable mistakes and horrible bedside manner of the doctors. 

Third Miscarriage: Chemical Pregnancy
In March 2016 I got pregnant again, only to have a chemical pregnancy three days later and end up in the ER on Osan AB due to hemorrhaging. During this time they decided to draw 4 vials of blood. At this point I figured something was wrong, despite the doctor telling me it wasn't my fault and that it was bad luck. Three losses in five months just isn't normal.

What Could Have Caused the Miscarriages
All of these issues can cause implantation failure. Since my miscarriages occurred before or around 6 weeks, I thought that if I could stop my body from attacking the baby during implantation, then I should be able to carry a baby to term.You can see a list of everything I took/was given, such as IVs, hormones, vitamins, supplements, and medicine on my my Rx protocol.


Anatomical: Uterine abnormalities
Anything that is not normal is a uterine abnormality. Things such as the shape of your uterus, uterine scarring, and incompetent cervix (horrible name, it means weak cervix), can be it hard for the baby to implant and/or thrive.

Genetic: Chromosomal defects
Neither my husband nor I had been tested for anything so we didn't know if we could have been carriers, however, chromosomal defects in the baby could have caused miscarriages

Genetic: Thrombophilia
I thought I might have a type of thrombophilia disorder, such as antiphospholipid syndrome (APS), Factor V Leiden, or methylene tetra hydro folate reductas (MTHFR) because they can cause sticky blood and blood clots. This means that nutrients to the baby are cut off. That could explain why I had such early miscarriages.

Some people believe as many as 50% of the population has a type of MTHFR gene mutation (there are different kinds, such as homozygous and heterozygous). People with MTHFR cannot metabolize folic acid (the synthetic form of folate), so they should take folate. MTHFR living has more info on how to prepare for pregnancy if you have a MTHFR mutation. In order to thin my blood I started taking low dose aspirin at night before I went to bed. Taking pills at night cut down on my nausea. The doctor told me to stop using it at 10 weeks, but I continued throughout my entire pregnancy. I figured that if it wasn't broken, why change?

Hormones: LPD (Luteal Phase Defect)
Since my cycle was down to 23 days, I thought I might have a LPD. This means that the uterine living sheds too soon and the baby does not have enough time to implant into the lining. I took progesterone cream in order to help with this. It can also help so you don't get blood clots. If you use progesterone cream make sure it comes from natural sources. Emerita is recommended by Wray at Progesterone Therapy. On Amazon, Smoky Mountain Naturals is a best seller.

Here's some info on how to use progesterone cream by Wray Whyte. She has a bunch of information about progesterone therapy. I didn't use as high of a dosage as she suggested though. I only used 1/8 of a teaspoon twice a day. What works for me might not work for you.

B vitamins are also said to help with low progesterone. I was taking those as well.

Hormones: PCOS
I really didn't think I had PCOS (Polycystic Ovary Syndrome) because I had no symptoms; however, I know that not every woman has symptoms. PCOS causes you to have too much testosterone as well as irregular cycles and difficulty in having the endometrium lining to develop properly. 

Infectious Disease: Mycoplasma hominis 
Another plasma issue is mycoplasma hominis like ureaplasma urealyticum can be responsible for RPL (recurrent pregnancy loss). I tested negative for this but your body is constantly changing.

Infectious Disease: Ureaplasma Urealyticum
I also know I have a high level of ureaplasma urealyticum and that might be responsible for RPL (recurrent pregnancy loss). However, when I went to the doctors, I wasn't tested for it.If I still had a high level it didn't affect this last pregnancy, but maybe that's because the IVIG did something and lowered it.

Immunological: High NK Cells
I also found out that high NK cells might cause RPL and attack the baby. Some doctors believe high NK cells are caused by inflammation, such as endometriosis or an immune-related disease, such as lupus. I was not tested for either.

Traditionally, prednisolone/prednisone (steroids), IVIG, and intralipids have been used to treat high NK cells. These are available by prescription only. There are natural OTC alternatives to prednisolone, such as Licorice root (buy it from Amazon), Maca (buy it from Amazon), and Wobenzym N (buy it on Amazon). Wobenzym N actually has been proven to help with immune related pregnancy loss.

Sixth Doctor: What I Was Tested For
I then went to Pyeongtaek St. Mary's Hospital in Pyeongtaek since they were close and they had fertility treatments on their website. I later found out that they have a very high success rate for IVF (53.6%), have fluent English speakers in the international clinic, and are famous for fertility treatments. I am not a candidate for IUI or IVF. I can easily get pregnant on my own. I just have trouble staying pregnant. I'm seeing Dr. Jeongrae Lee, who is supposed to be a famous infertility doctor in Korea. He works a lot and is very nice. Never heard him speak a word of English, but they provide free translators, so I don't care. (ETA: I finally heard him speak English after my emergency C-section.)

They tested me for high NK cells, thyroid issues, and did an HSG test (I asked for a shot of ketorolac in the butt, it made the HSG painless for me, but I know other people have gotten the shot and it hasn't done anything. It cost me 5,000 won so I thought I would try). Only my NK cells were high; the other two tests came back negative. I was told that IVIG would help.

My Rx Protocol
I used progesterone cream (to help with a suspected LPD) and low dose aspirin (to help thin my blood). For my high NK cells, I was given prednisolone, IVIG, and intralipids. The doctor also suggested I take two OTC medicines. The first one was progesterone cream to help with a suspected LPD. If you use progesterone cream make sure it comes from natural sources. Emerita is recommended by Wray at Progesterone Therapy. On Amazon, Smoky Mountain Naturals is a best seller. The second was low dose aspirin to help thin my blood.

The doctor also suggested I take two OTC medicines. The first one was progesterone cream to help with a suspected LPD. If you use progesterone cream make sure it comes from natural sources. Emerita is recommended by Wray at Progesterone Therapy. On Amazon, Smoky Mountain Naturals is a best seller. The second was low dose aspirin to help thin my blood.

I had been taking both of those since I found information online from women who said it had helped them (which beings me back to the message I posted above about being proactive). I also took supplements. To find out more about the dosage of my prescription and over-the-counter medicines and when they were taken, please see my Rx protocol.



Summary of Dates
November 2015
  • Early Nov: Suspected CP (pregnancy #2: miscarriage #1)
  • Mid Nov: Confirmed ovulation
  • Late Nov: Positive HPT (pregnancy #3: miscarriage #2)

December 2015

January 2016

March 2016

April 2016

May 2016

June 2016

July 2016

August 2016

September 2016

October 2016 

November 2016 

December 2016

Sunday 27 March 2016

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